On Saturday, Nori passed her car seat challenge, sitting for an hour without an episode. On Tuesday, they both have an eye exam, and if all goes well, Nori will be released on Wednesday. I hold my breath when I think about it so I am more likely to have an episode than they are. I am not getting my hopes up, knowing how things can change. Charlie will stay a little longer, but he must know what is going on because he removed his feeding tube and has been out eating Nori for the past couple of days. We do not have an exact date for when we can leave to come home since we are still unsure about how to get home. The babies need to see a pediatrician two days after they are discharged, and with Charlie's discharge date still up in the air, we are having difficulty making plans. So we just say "soon" aloud, clinging to our optimism on the inside.
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1 comment:
Love Charlie's hat!We can't wait to see you guys and miss you! Thanks for the pictures...CVH
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